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Who We Are

Welcome to the Huntington's Disease Society of America's New England Region. Our region covers Connecticut, Massachusetts, Maine, Rhode Island, Vermont, New Hampshire, and Albany. Our region includes the following chapters and affiliates: Albany Chapter, Connecticut Affiliate, Maine Affiliate, Massachusetts Chapter, New Hampshire Chapter and Rhode Island Chapter.

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

Our Vision

A world free of Huntington's disease.About HDSAThe Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.

HDSA Centers of Excellence in Our Region

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 41 Centers od Excellence across the United States. Our region is fortunate to have these institutions as part of this outstanding program:

HDSA Centers of Excellence

Albany Medical College (NY)
Beth Israel Deaconess Medical Center (MA)
Massachusetts General Hospital (MA)
University of Vermont, Frederick Binter Center for Parkinson's Disease and Movement Disorders (VT)

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page.

 Contact Us

Regional Development Director
Virginia Goolkasian
PO Box 14
Chelmsford, MA 01824
p. (978) 905-5588

Thuy Nguyen
Virginia Goolkasian
PO Box 14
Chelmsford, MA 01824
p. (978) 905-5588

National Office Contact:

Director of Field Development and Operations
Nancy Rhodes
505 8th Avenue
New York, NY 10018
p. (212) 242-1968