Connect with our region:
The Huntington’s Disease Society of America: social workers/support groups in New England Social Workers
  • Connecticut Chapter Social Worker only: Mary Dunleavy, LICSW, or 203-993-0488
  • Massachusetts, Rhode Island, and New Hampshire: Kara Keegan, LICSW, or 508-446-7705
  • Maine and Vermont: Please contact the regional office 978-905-5588
Support Groups:
  • HDSA groups are caregiver only or mixed. Mixed refers to groups which are open to caregivers and people with or at risk for Huntington’s disease.
  • We highly recommend you contact the group leader before attending your first group as on rare occasions groups are cancelled due to weather or coverage.

CLICK HERE to find online support Groups

If you would like to start a support group, contact Anne Leserman, HDSA Community Services Manager at

Caregiver support group meets the 1st Saturday Bimonthly 11:00 a.m.-12:30 p.m.
February, April, June, August, October, and December
The Falls 
​2300 Washington Street Newton, MA 02462
Cheryl Sullivan: or 603-809-4555
South Shore
Meets Evenings monthly
Braintree Manor Healthcare
1120 Washington Street
Contact group before attending
Meredith Tornaritis:
Mixed support group Bimonthly Tuesday of every other month
7:00 p.m.-8:30 p.m.
The Potpourri Plaza: 2nd Floor Conference Room
​241 King Street Northampton, MA
Amy Fowler: or 413-582-3908
Mixed support Group meets 3rd Saturday of the month 10:30 a.m.-12:00 p.m.
Beverly Hospital Garden Conference Room
85 Herrick Street Beverly, MA 01915
Mirta Uliva: or 978-317-2391
Mixed support group meets one evening per month
6:30 p.m.-8:00 p.m.
Tewksbury Library 2nd floor study Room #1
300 Chandler Street Tewksbury, MA 01876
Cheryl Sullivan: or 603-809-4555
Mixed Support Group Bimonthly 2nd Saturday of every month 10:00 a.m. - 11:30 a.m.
(6PM-7:30PM after February)
UMASS Med Center: Benedict Building Room A3-101
55 Lake Ave North, Worcester MA
Kara Keegan: or 508-446-7705

Mixed support group meets third Thursday of the month 6:00 pm to 7:30 PM
William Backus Hospital
326 Washington St Norwich CT
Deborah Pausig, LMFT,CT or  203-985-8246
North Haven
Mixed support group meets first Thursday of the month 6:30 to 8:00 PM
5 Roger Ave North Haven CT
Deborah Pausig, LMFT,CT or  203-985-8246
Meets the Last Thursday of the month
7pm to 8:30pm 
Mary Dunleavy LMSW Operation Hope
636 Old Post Road Fairfield, CT
203-216-6266 or

Mixed support group meets the 4th Wed of the month
6:00 pm to 7:15 pm
St. Joseph's Hospital
360 Broadway Bangor, Maine 04402
Chapman Conference Room 2
Nancy Patterson: or 207 669-5212

Rhode Island
East Providence
Caregivers group meets 3rd Tues of the month
6:30 pm to 8
Waterview Villa
1275 South Broadway East Providence, RI
Jean Baxendale: or 401-487-8621
Mixed group meets first Tues. of the month
6:30PM to 8:00PM
Tockwotton on the Waterfront
500 Waterfront Drive, East Providence, RI
4th floor pub
Alexis Derdarian:

Mixed support group meets 2nd Tues of the month
5:00 to 6:30PM
Vermont Medical Center Fannie Allen Campus
790 College Parkway Colchester VT
Dunbar Room Free Parking or
Mixed support group meets 3rd Sunday of the month
1:00 to 2:30PM
Rutland Regional Medical Center
160 Allen Street, Rutland, VT
Deb Johnston: or 802-353-9449

New Hampshire
Every 4th Saturday of the month
10 AM to 11:30 AM
Derry Library
64 E Broadway, Derry, New Hampshire
Wendy Landry: