• Join HDSA on Rare Disease Day – February 28th!

    On February 28th, lets show our strength—together. This year, we’re counting on you to help us raise $15,000 and unlock our matching gift challenge, doubling our impact to $30,000 in support of HDSA programs, research, and family services. We can’t do this without you! DONATE TODAY!

  • MEET OUR NEW PRESIDENT AND CEO AMY GRAY

    We are excited to announce that Amy Gray has joined our organization as the new President and Chief Executive Officer.

  • Watch the HDSA EL-PFDD Meeting!

  • 2023 HDSA Annual Report

    We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we've achieved as One HDSA.

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