Save The Date!

Please join us on September 18th, 2025 for a very special 24 hour day of giving dedicated to Marjorie Guthrie. On Founder's Day, we honor Marjorie and her legacy by raising critical funds, voices, and awareness for the HD community all over the country, and across the world.

📣 Share your voice! Take the HDSA Strategic Plan Survey and help shape the future of our mission.

HDSA Research Fellowships 2025 Berman- Topper Family HD Career Development Fellowship Recipient

Join HDSA on Rare Disease Day – February 28th!

On February 28th, lets show our strength—together. This year, we’re counting on you to help us raise $15,000 and unlock our matching gift challenge, doubling our impact to $30,000 in support of HDSA programs, research, and family services. We can’t do this without you! DONATE TODAY!

MEET OUR NEW PRESIDENT AND CEO AMY GRAY

We are excited to announce that Amy Gray has joined our organization as the new President and Chief Executive Officer.

Watch the HDSA EL-PFDD Meeting!

2023 HDSA Annual Report

We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we've achieved as One HDSA.