• Watch the HDSA EL-PFDD Meeting!

  • Amaryllis

    The amaryllis is a symbol of strength and determination for the HD community. Place your orders starting October 18th!

  • GIVING TUESDAY 2024!

    This Giving Tuesday, your generosity can make a lasting impact on the Huntington’s disease community. Whether you donate, spread the word, or volunteer your time, your support helps us continue providing vital programs and resources to families across the United States.

  • 2023 HDSA Annual Report

    We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we've achieved as One HDSA.

  • JOIN POWER HD

    By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

  • HD SYMPTOMS AND TREATMENT IMPACT SURVEY

    This first-of-its kind survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.

  • SAVE THE DATE!

    Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025 This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

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