This first-of-its kind survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.
You can participate in the HDSA Externally-led Patient Focused Drug Development (EL-PFDD) Meeting for Pre-symptomatic and Early to Mid-Stage Adult Onset of HD, on November 13, 2024.
By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.
Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025
This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!
